I have always compared our story to a journey. Now I know what an incredible journey we are in for. We have only begun this adventure last fall since learning of Lilah's diagnosis... and we fell right off that cliff begging and desperately searching for a way back up to the top. But this was our new fate and hand-in-hand, we turned and saw the unknown. We were scared. Crazy scared. We had no idea what we were in for, if we would succeed and if happiness could be found in this new place. So, we took a few steps. Yes, it was different. A few more steps. Ahhh... different isn't always bad. A few more steps. Starting to see the light. Keep going. Wow, different is lovely. And even more steps. Different is amazing. Our journey is amazing. I don't want to go back. I am too in love with different. I am too in love with our journey and this new view.
Here's one thing I have learned in the one million things I have learned... the reason my words aren't all there yet... is because my journey is only just beginning. I have only taken a relatively small number of steps when I think about how many steps I will hopefully take in my lifetime. I have grown. I have changed. I am giddy like a school girl about all of these secrets I have unraveled in getting pushed off that cliff. But when I try to articulate everything eloquently... I am pretty sure that I fail. So for now, my words can still play chase and I will attempt to overcome the intimidation of writing about this very important topic that I so badly want to share in the perfect way:
Bloom... the party that will always be more than just a party to me. It could simply be put that it was undoubtedly one of the best nights of my life. Ever.
First, I have to give credit to the author of Bloom, Kelle Hampton. I first fell in love with Kelle's daughter Nella shortly after reading her birth story over three years ago where Kelle so beautifully, honestly and bravely writes about the moments after learning of Nella's Down Syndrome diagnosis. I read Bloom when I was pregnant with Lilah and I should just say, I was so moved. Looking back, there was something different for me reading this book. I actually had the thought, "I am reading this for a reason. I don't know why yet... but someday I will understand." A few months later when I learned Lilah would be born with dwarfism, I found myself referring to Bloom and thinking about Kelle and her experience. It was my road map. I saw Kelle's happy ending and I skipped a lot of heartache and went straight to that happy place. Not to say that it wasn't hard... but oh how it saved me from deep pain. Needless to say... having Kelle as a role model and a friend has been life-changing for me. And in her book, she describes a party where her friends gathered and celebrated Nella and the first year of her life. It was in reading this that I knew... I needed to celebrate my Lilah too. I needed it for her. I needed it for me.
And so the idea of a Bloom party was born. So I called my best friend, Tina and said, "How?" How do we have a party with lots and lots of women from the community that don't know each other, don't necessarily know me that well and that will voluntarily take time out to celebrate this baby girl AND form new friendships AND serve as a safety net for each other. Mamas lifting each other up, supporting, sharing, loving instead of judging, comparing and criticizing. "How?"
{View DVD invitation here... }
And it went a little something like this:
Ladies... fifty-five of them... coming into my house with smiles and hugs and lots of energy. Ladies I haven't seen since I taught with them 7 years ago. Ladies I haven't seen since our sorority days twelve years ago. Ladies I have only met once. Ladies that were my new neighbors. Ladies that I haven't seen since high school a very long time ago. They showed up. To celebrate my sweet Lilah. To celebrate differences. To celebrate friendship. They showed up.
I clinked my glass and gathered everyone in the family room. I had a story to share. My story. Lilah's story. It was important to me to say, "Thank you." Thank you for showing up. Thank you for that e-mail... that letter... that text...that Facebook 'like'... that Instagram comment... that card... that prayer. It meant something. It helped me on my new path to have the confidence to keep going. And in a world where do-gooding goes unnoticed... I needed to make sure it didn't. It mattered to me. And so, I wanted to encourage all to keep on being do-gooders because we are all making a difference... to someone. Continue to lift each other up. Continue to understand. Continue to teach your children that different can be beautiful.
For it truly was one of the best nights of my life. Seeing Lilah in her polka-dotted pink jammies making a cameo at the party, loving all of the attention letting anyone hold her and snuggle her... was just the absolute best. This party was for you sweetie... I want the world to know that the lessons you have taught us about this one and only precious life have made us forever changed. I continue to be humbled by the light you hold in your eyes, your ability to make people fall in love with you and the wisdom you carry in your soul. I love you... my little birdie.
And for those of you who know me well... it wouldn't surprise you that we are doing a Bloom party round II. Because when something is that great... it's just a shame not to share it. I will give more details later and yes, you are invited. And yes, it will be in Indianapolis this summer. So, see you soon.
"From the deepest wounds, beauty finds a place to bloom..."